What a week! Nothing crazy happened but just a rough one. Don't worry all boys(big and little) are doing great! I have had a very rough week, I found a blog of a former liver transplant recipient(2007) and I stayed up way way too late and spent too many hours to count one night reading. I thought when I started reading it, that it was good for me to know. But as I climbed into bed that night and could not fall asleep I started doing too much "thinking" a few hours later finally asleep and the anxiety began. It is amazing how your mind can dream up things. After 4 days of emotional outbursts I was told by Cody I am no longer allowed to read that blog. My poor family has had to deal with all of this! I compare this week to when we found out Cody needed the liver transplant and do now know which was worse since I knew more detail this time around.
But gotta love Cody first he was mad that I let my mind wander that long before I said anything and that I read it. But with the most sincere way any husband could, he calmed me of all my fears. It is preatty bad cause he is the one getting the transplant not me! And for ME to get anxiety is rare! He's always been the one that does enough worrying for the both of us. But after that I felt better, of coarse still knew I had stuff work through I was able to finally "act" normal. Still struggling a litte we went to church and had great lessons as always and we were reading in the New Testiment and honestly can't tell you what the lesson was about cause around the beginning we read a scripture: Matthew 14:31
And immediately Jesus stretched forth his hand, and caught him, and said unto him, O thou of little faith, wherefore didst thou doubt?
After that someone spoke up Fear Not! Doubt Not! Then said again directly to Cody and patted him on the leg. Little do they know what impression that they made on me. Honestly it was what I needed to hear. I know that if I fear not, and doubt not He will stretch out his hand and help me in my time of need if I keep my faith and do not doubt. I always knew that but sometimes your mind gets away from you. Well gets ALOT away from you. I am grateful they were insipred to speak up in Sunday School today.
On a lighter note Fundraising is underway moving along greatly! Marjean has gotton the June 4th event going and it is running very fast. She has some very chosen sisters that have been so willing to help us in our time of need. April 6th is our first meeting for the Walk/Ride/Run 5k hope to be scheduled for July 9th. We have also been accepted by Anything For A Friend a nonprofit organizaion that will help us get the word out about the 5k and really help us with whatever we need. We are really lucky to have Anything For A Friend besides us.
Mom and I went and met with Yes!Utah we want to help with donor awareness. We met with somebody that wants to help us and help get others to be at our fundraisers to help create more awareness, they also have a fun old fashion taxi cab that they said we might be able to have at the 5K possibly. So that is exciting that we have then on our sides too! So we have had alot of happy things happen this week dispite my "episode" but are so greatful for all the support we have. Thanks love you all! A
March 27, 2011
March 22, 2011
Food For Thought
Just saw this fact and found very interesting.....
In the US there are about 19 liver transplants per million population. This is about twice the heart transplant rate and about one third of the kidney transplant rate. Each day, about 77 people get the organ transplant that gives them a second chance, but 19 other die waiting for a donated organ.
HHHMMMM Thoughts????
In the US there are about 19 liver transplants per million population. This is about twice the heart transplant rate and about one third of the kidney transplant rate. Each day, about 77 people get the organ transplant that gives them a second chance, but 19 other die waiting for a donated organ.
HHHMMMM Thoughts????
March 21, 2011
Launch Of Cody's Blog!
Well with some of the exciting "coverage" we will be getting with the " House 4 Hope" and thankfully Anything For A Friend organization. I decided I didn't want too much of the "little animals" online. So this blog will stay the same and updated the same but a little more family/personal. Cody's blog will be updates on the fundraisers and anything exciting but so will this blog. So just to warn ya they will be a lot alike! So expect repetitiveness.!
http://change4cody.com
http://change4cody.com
March 14, 2011
I sit here thinking about what can I write that has happened recently. Honestly our lifes are wild and crazy which is the way we like it and alot has happened really. But I reflect back not too long ago when our first born came to our family. I just had the opportunity to sit down with him tonight and have a long serious chat, one that really I don't believe I would have stopped for if I didn't have an issue to address. I realized how fast time can slip you by that you have your baby turning 5! Yea just a few days ago he turned 5, breaks my heart that he is that big, he is like a little man. He came walking down the stairs the next day telling me:
"Mom, I really feel so much bigger now that I am five!
I always reply with: "I know! Now you are a full hand full."
And honest to truthness he tries to act like he is bigger, sometimes you have to do a double take to make sure he was the one that said it. He's one that in this dark hour helps the light shine through. I have been asked so many times then I can count if I knew what my future held with Cody that we would still have had our boys when we did, "Isn't it harder? Wouldn't you have waited?" The honest truth is NO! I remember when Cody was sick and on his worst days with UC. Having Hutton's smiling face and laughter around is what pushed us through. (Honestly one of Hutton's favorite memories of his Dad was "sneaking" a milkshake up to his hospital room.) Yes we had a rough road and that was not to stop us, if we were blessed to have his health back and the ability to have more smiling little faces we wanted it to work out. Sure enough we have Huston, a little spitfire of a kid but also the apple of our eyes. And again we get asked: "If you had known?"
NOPE!
Would not change a thing. Yea would be easier but everything happens for a reason. They chose us. They knew what they would be coming to before they took the slide from heaven. I am just grateful for the trust that my Heavenly Father has in Cody and I to take 2 of his favorites so that they can teach us many things and know that we have a big reason to fight.
Cody and I recently read a book "Untill My Heart Stops" written by Paul Cardall, recent heart transplant recipient, song writter, and musician. His goal or moto he started with was "Living For Eden" Eden was his daughter. We all have reasons to fight of coarse alot of us choose our kids. But one thing that he kept expressing was how he was blessed to be able to have the experience he did. (He was born with a heart disease and was not expected to live a week, thru multiple surguries through his teens and then to the point where in 2009 he was told he would not survive without a transplant, but with this transplant he needed a very special heart one that could work with his anatomy of his heart since he had so many different types of surgeries it needed to be just right) He continued to state he was blessed to have the opportunity to be where he was each day.
I kept thinking one of these chapters is going to be negative it has to be! Can you honestly say that you are blessed to be sick?
I can't speak for Cody but, after many weeks of thinking about it, yea you can think you are blessed to be sick. I look around and see what I have: materially, spiritually, physically and eternally. Yea I am blessed I have 2 boys that really are the light in our dark tunnels some days. I have a roof over my head that my husband gave me, my health to get all 4 of us through this, friends and family near and far, and the knowledge that I know that it is all going to work out the way it is supposed to.
Honestly didn't know what this post was going to be like just felt like I needed to express! There is so much more that can be expressed on a Computer while your family is asleep and you can think by yourself in silence. Love You All.
"Mom, I really feel so much bigger now that I am five!
I always reply with: "I know! Now you are a full hand full."
And honest to truthness he tries to act like he is bigger, sometimes you have to do a double take to make sure he was the one that said it. He's one that in this dark hour helps the light shine through. I have been asked so many times then I can count if I knew what my future held with Cody that we would still have had our boys when we did, "Isn't it harder? Wouldn't you have waited?" The honest truth is NO! I remember when Cody was sick and on his worst days with UC. Having Hutton's smiling face and laughter around is what pushed us through. (Honestly one of Hutton's favorite memories of his Dad was "sneaking" a milkshake up to his hospital room.) Yes we had a rough road and that was not to stop us, if we were blessed to have his health back and the ability to have more smiling little faces we wanted it to work out. Sure enough we have Huston, a little spitfire of a kid but also the apple of our eyes. And again we get asked: "If you had known?"
NOPE!
Would not change a thing. Yea would be easier but everything happens for a reason. They chose us. They knew what they would be coming to before they took the slide from heaven. I am just grateful for the trust that my Heavenly Father has in Cody and I to take 2 of his favorites so that they can teach us many things and know that we have a big reason to fight.
Cody and I recently read a book "Untill My Heart Stops" written by Paul Cardall, recent heart transplant recipient, song writter, and musician. His goal or moto he started with was "Living For Eden" Eden was his daughter. We all have reasons to fight of coarse alot of us choose our kids. But one thing that he kept expressing was how he was blessed to be able to have the experience he did. (He was born with a heart disease and was not expected to live a week, thru multiple surguries through his teens and then to the point where in 2009 he was told he would not survive without a transplant, but with this transplant he needed a very special heart one that could work with his anatomy of his heart since he had so many different types of surgeries it needed to be just right) He continued to state he was blessed to have the opportunity to be where he was each day.
I kept thinking one of these chapters is going to be negative it has to be! Can you honestly say that you are blessed to be sick?
I can't speak for Cody but, after many weeks of thinking about it, yea you can think you are blessed to be sick. I look around and see what I have: materially, spiritually, physically and eternally. Yea I am blessed I have 2 boys that really are the light in our dark tunnels some days. I have a roof over my head that my husband gave me, my health to get all 4 of us through this, friends and family near and far, and the knowledge that I know that it is all going to work out the way it is supposed to.
Honestly didn't know what this post was going to be like just felt like I needed to express! There is so much more that can be expressed on a Computer while your family is asleep and you can think by yourself in silence. Love You All.
March 4, 2011
One-Third of the Thirds
Well we were fortunate to get a letter from the Transplant office yesterday that is confirming our listing on the Liver Transplant list. One other detail they mentioned was they advised us we are in the top one-third of the list. So we are not near the bottom we are near the top and working our way up.
We do not need to go back till May where we need to get more labs done and a office visit with the doctors for a check-up. From the labs and the check-up we will be able to see if we need to be higher on the list. But by those labs will also tell how "sick" Cody is. So we were excited to get that letter yesterday.
We do not need to go back till May where we need to get more labs done and a office visit with the doctors for a check-up. From the labs and the check-up we will be able to see if we need to be higher on the list. But by those labs will also tell how "sick" Cody is. So we were excited to get that letter yesterday.
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